Hamilton Regional Multiple Myeloma Support Group
Hamilton, Ontario, Canada


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Hamilton Multiple Myeloma

Support Group Meeting

Saturday November 13th 2010

 

Resource List

 

Finding and Evaluating Health Information on the Web and Beyond!

Elizabeth Obermeyer-Kostash, JCC Patient & Family Resource Centre

[email protected]

905-387-9711 x65109

 

 

Evaluating information on the web

 

Project False Hope http://www.competitionbureau.gc.ca/healthfraud

Confronting a cancer diagnosis can be deeply distressing. Having accurate and trustworthy information can help you move forward with hope. The Competition Bureau's Project False Hope web page features interactive tools to help you learn to spot the signs of fraudulent online cancer treatments and cures.

 

Quackwatch http://www.quackwatch.com

Quackwatch is an international network of people who are concerned about health-related frauds, myths, fads, fallacies, and misconduct. Its primary focus is on quackery-related information that is difficult or impossible to get elsewhere. The organization investigates claims of health fraud, answers inquiries about questionable products and services, debunks pseudoscientific claims and works to improve the quality of health information on the web.

 

Cancer Treatment Watch http://www.cancertreatmentwatch.org

This site is a companion to Quackwatch, and offers the same sorts of information and services, but with an eye to fraudulent cancer cures and claims that exist on the web and elsewhere. They also provide links to reputable cancer organizations and articles, making this site a good go-to resource for legitimate cancer information, as well as helping you avoid fraud.

 

Health on the Net Foundation http://www.hon.ch

HONcode is the oldest and the most used ethical and trustworthy code for medical and health related information available on the internet. It is designed for two target audiences: the general public and the web publisher, actively involving the site owner in the process of certification. The HON Foundation is a Non-Governmental Organization, internationally known for its pioneering work in the field of health information ethics, notably for the establishment of its code of ethical conduct, the HONcode. The HONcode symbol on a website denotes quality, ethical and reliable health information.

 

 

Evaluating media and news information

 

NCI Cancer Risk: Understanding the Puzzle http://understandingrisk.cancer.gov

You've heard the stories about things like cell phones and deodorants causing cancer. How do you decide if the stories you find in the media are accurate? Learn how to analyze what you see or hear in the news with this interactive and easy to use website from the National Cancer Institute.

 

Sense About Science http://www.senseaboutscience.org.uk

Sense About Science is an independent charitable trust that responds to the misrepresentation of science and scientific evidence on issues that matter to society, From scares about plastic bottles, fluoride and the MMR vaccine to controversies about genetic modification, stem cell research and radiation, SAS works with scientists and civic groups to promote evidence and scientific reasoning in public discussion.

NHS: Behind the Headlines http://www.nhs.uk/News/Pages/NewsIndex.aspx

Behind the Headlines provides an unbiased and evidence-based analysis of health stories that make the news. The service is intended for both the public and health professionals, and helps to explain the facts behind the headlines and give a better understanding of the science that makes the news, provide an authoritative resource for GPs which they can rely on when talking to patients, and become a trusted resource for journalists and others involved in the dissemination of health news.

 

Health Insight http://www.health-insight.harvard.edu

Overwhelmed by health information?You're not alone.  Advances in science and technology continue to increase the amount of health information available to the media and public. This guide seeks to help consumers evaluate health and scientific information and consider how the information can be used to improve their lives in the Age of Risk Management.