Multiple Myeloma Support Group
Hamilton & District
Hamilton, Ontario, Canada


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SATURDAY MAY 13, 2006 MEETING

WELCOME

Lori informed that some of the packages for “Bank on a Cure” were missing mailing labels. Lori, Laura, and Marnie are going to an IMF seminar in Scotsdale Arizona and will be sure to bring back mailing labels. Sorry for any inconvenience.

Lori made us aware of the passing of David Maylor who was a member of the group. His wishes were that in lieu of flowers, donations should be made to the Support Group to help keep it going. This gesture is very much appreciated.

Lori spoke briefly of Relay for Life. She, along with Marnie, Wayne and Denise are involved. All sponsors are welcome. Anyone wishing to participate can see Lori for more details. Great fun will be had by all at Dofasco Park, raising funds for cancer.

GUEST SPEAKER

Laura introduced and welcomed our speaker for this month, Christine Sywine. She will address Symptom Control – Part II. Christine is a clinical nurse specialist with St. Joseph’s Healthcare. She has been a registered nurse for 18 years and holds degrees from Mohawk College and Buffalo. Christine’s outline will cover pain strategies and other symptoms, along with information on physcological, social and spiritual care. Christine was kind enough to send a copy of her power point presentation to be attached to this month’s minutes. Throughout Christine’ presentation we received a handout, titled Information for Heirs and Executors. This is essentially a check list to aid in getting one’s affairs in order to whatever extent they or family are comfortable with.

Two books were highly recommended by Christine. They are both easy reads and are helpful to not just patients and their families but to anyone.
“What dying people want” by David Kuhl, M.D.
“The four things that matter most”, by Ira Byock, M.D.

There was time for discussion and questions before Christine’s presentation was concluded. Laura thanked Christine for her time in addressing the group.

Laura informed us that MM has been in the press a lot of late. The Minister is trying to push through a bill to change how the Ontario program runs. This is not necessarily for the better. One item of concern is the replacement of generic drugs of the use of “tried and true” brands. This could possibly dissuade research. We may continue to join forces with other groups in order to continue advocacy most effectively.

NEXT MEETING

The next meeting will take place on Saturday, July 8, 2006 at 1:00 p.m. at the Linden Park community Church.